Interview Ideas

Hello all! I am excited to announce a new page on this site.Β The Adult Stories page will highlight adults who live with Spina Bifida. There will be biography type pages interspersed with interviews.

I’d like to ask for your help in making this page one that people can really be encouraged by. First, do you know an adult living with Spina Bifida who would be willing to be interviewed? Or someone with a SB diagnosis who has done something amazing in sports/science/society that we can post a news story about?

Second, what are some great interview questions? What would you be interested in learning from an adult who has Spina Bifida?

Thank you so much for your input!

Lydia Wells


  • This is a tough one. I just spent what felt like an eternity researching interview questions and feel more lost than when I started.

    I think that sometimes the most interesting questions in an interview have nothing to do with the reason someone is being interviewed (in our case Spina Bifida), but with just interesting facts and funny stories about the person. Take this interview with Blaine Harrison as an example:

    Only the last two questions were disability related.

    Here’s an article on Six Ways to Ask Better Interview Questions:

    This is mostly food for thought. I don’t have any questions to suggest as of yet.

    I think MrsK would be really good at this.

    MrsK? Thoughts?

    • I like the idea of an interview happening naturally also. Ask one question which leads to another, etc. I also love having non-SB related questions, especially because I feel like I am constantly having to tell folks how “normal” we are despite having 2 kids with SB. These non-SB questions can show that.

  • Here are a few ideas. I’m not very good at this.

    Here are some SB ones:

    1) What advice would you give to newly diagnosed parents?

    2) What do you wish your parents would have done differently?

    3) What is the most important thing you do to maintain your health?

    4) What would you attribute your strength to during difficult times?

    5) What was your biggest challenge in your school years?

    6) What is your biggest regret?

    7) If you could change one thing about the world what would it be?

    Here are some fun ones:

    1) Favorite book & why?

    2) What would you do if you could spend a day anywhere with anyone?

    3) Best thing I ever ate. . .

    4) I get very angry at. . .

    5) My dream job would be. . .

    6) My biggest weakness/vice is. . .

    7) . . .makes me laugh

    8) . . .makes me scared

  • Wow, these are all great questions – nice job TSpar!! I wish I had something to add, but don’t πŸ™ Excited to see the interviews, though πŸ™‚

  • I can’t remember her name off the top of my head but the lady who has spina bifida who is a neurosurgeon–do you know who I am talking about? She is so encouraging to me. Even if she didn’t do an interview, just having a link to her articles. I’ll see if I can find some….

  • Just saw this. I was offline yesterday.

    I think I’d like to know with regard to the SB itself is what matters the most as an adult? I think as parents of young children we are often caught up in all of the medical aspects that affect our children now. But someday they will be adults, and of these things will become part of the managed ordinary. What is it that we can have our eyes on for their future? What is it that we can do to help get beyond that perspective we have as parents of young dependents so that they can be independent, adults with full lives?

    That is a very open-ended question. & I suspect the answer will be somewhat different from person to person. But it is something I think about all the time. I tend to be of the opinion that we are raising adults, not children.

    Beyond that, I think the earlier questions are fantastic. I have no idea who we might ask, but I’m looking forward to discovering who you find.

    • Yes, I’m with you MrsK! Great question!!! I had that in mind also. I know already I have been able to offer counsel to parents of young children with SB, as a mother of a pre-teen with SB myself, as to what matters to us now, what we wished we had done differently. I’d love the thoughts of someone who has already gone through the stage we are at now.

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