So… A few days ago I posted elsewhere about standing. Basically I was looking for input about the possible use of standers and at what age that seemed to happen for others. I got some good feedback, but I’d love more, if you ladies have any.
Z will soon be 11 months. She can stand, but she does not pull to a stand. We saw our PT earlier this week and talked about this some. Her take was that now was absolutely the time to actively encourage standing. She was not willing to jump to equipment (i.e. stander) just yet. Z’s big weak point is buckling knees. Knees are controlled by your quads and her feeling was that Z just hadn’t had time to build strength. (True enough since we aren’t crawling either.) If a muscle isn’t active it isn’t improving. So, for PT the first step is getting our legs strong enough to support us. Putting her in a device that doesn’t require her to actively use her legs doesn’t really do that. Instead, she really encouraged us to just help Z stand and be there to support as needed for as long as she will tolerate.
In addition to that, we have discovered that when we stand the Little Miss up, her ankles tend to roll out a bit. I don’t want to do anything too aggressive until we’ve had that seen about. PT and I are in agreement there.
I’ve made an appointment to see our Ortho. We go in a couple of weeks. We love him and find he suits us well. He also is part of the whole team that provides our care via Nemours. That means her notes will be current for the whole team, etc. PM&R are there if we need to see them too for some reason, etc. If we do need equipment, I think they are our best shot at a thorough evaluation and trial. The only possibility that concerns me is that they are about 2.5 hours away. If we end up with SMOs or AFOs and they need adjusting, that is a long way to go. Anyone use an MD in one town and an Orthotist in another?
I also reached out to the SB clinic in Boston. I had a nice exchange with one of the nurses there who helped me before. She volunteered to talk to their head PT and have her write up something explaining the pros and cons and general protocol of standing and standers for SB kids. Said PT is out of town this week, unfortunately. Hopefully I’ll have something next week.
Having said all that, I’m still a bit torn. Z is already tolerating more time standing. As in, noticeably more time daily. But I can’t always just sit next to her. A three year old, a teenager and two big dogs all impair my ability there. Standing is beneficial for so many things that I’d like for her to be able to practice it more. Thus my possible interest in the stander. On the other hand, she’s improving so quickly that who knows? By the time we could get one it might not be necessary. That would be silly. Also, she cannot achieve a standing position on her own. Not sure what I think about that one way or another.
Any experience you ladies can share, insight you might have, is much appreciated.