SB Occulta – Diagnosed at 6 years old
We have a different story than most. I was 28 when I had Lili, our first of three children. She was a bit slow to meet the milestones (never crawled, walked very late, couldn’t hop, etc), but we were always told she was just a bit behind physically. After being successfully potty trained for over 2 years, she suddenly started getting repeat UTI’s and losing control of her bladder and bowel. She started to whine of pain and “bugs crawling in her back and on her legs”. She has neurogenic bladder and bowel and the doctors suspected a tethered cord. In her release surgery, they found spina bifida occulta. It has been just over a year since her cord release and her bladder has improved but we struggle daily with stool incontinence, pain and constipation. I am VERY interested in getting her off of her laxatives and finding a natural solution to her constipation and getting her continent. She has intense medical anxiety so refuses all enemas, catheters, etc. We end up in the hospital having to put her to sleep to remove impactions and cath. She is 7 now and it has become embarrassing and traumatic for her.