If you or someone you love have spina bifida we want to meet you!


» Read more


So this isn’t so much about SB, but we have all the right folks here to ask. My 3 year old has just begun presenting with eczema.  It doesn’t run in my family, but there is some in his dad’s family ( a cousin).  Started a month ago maybe, just on the backs of his knees and, to be honest,

» Read more

Helping my 3 1/2 yo slim down

Hello! My husband just found this page and I just signed up. I can’t believe we’ve made it over 3 years and never found this wonderful website. Everyone here sounds amazing!   Our son seems to have a higher level lesion than the most active posters from what I can tell. He needs KAFO’s at the very least, but would

» Read more
1 2 3 4 12