Welcome to Spina Bifida Naturally! We’re so glad you’re here. We wanted to take a minute to explain how the community forum works. When you create a new post using the big orange button located on the right sidebar of this page, it will always appear at the top of the community forum page directly under this post. But it will also
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i just got my 12 year old daughter off of Ditropan. She’s been on it for years and I swear it’s been a route cause of many mental issues we’ve had to deal with in the past 2 years. She’s been off of it for a week now but already has a UTI & is having more accidents due to
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Hi everyone! I am from the Philippines with a 6month old baby girl diagnosed with SB. Does anyone in this group has the same diagnosis as my baby? Spinal bifida involving the sacrum from the s2 level inferiorly with lipomeningocele,low lying and posterior tethered cord at the s2 level as well as intraspinal and extraspinal lipoma. This is the result
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A few of us have been discussing the merits of juniper oil for bladder via email. We know very little, but have a lot of speculatory thoughts about what it might be capable of accomplishing in our little ones’ bladders. So I have cross-posted over on the FB Group – Wellness with Essential Oils for Spina Bifida Families asking the
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I’ve been meaning to get on here to post about the 6 month trial we are doing with natural bladder meds. In October we finally got in for ultradynamics testing in Portland after being denied twice in Seattle. Tillian is 3 and hasn’t had one in over 2 years. The resuls showed irregular shaped bladder, some bladder wall thickening, lower
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Hi everyone! I just joined and I’m happy to be here. =) CJ is my SB kid. He is almost 8 and we’ve seen a lot of great things come from taking a more natural approach with him, especially with diet and exercise. I’m a breastfeeding educator, childbirth educator in training and Masters in Public Health student. I teach an
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Hi! I have SB and am in my 20s. Several months ago I wrote the following letter to parents on my blog. Tina has asked me to share it here. Please feel free to follow the link to my blog and I highly recommend checking out the tab called “For Parents” at the top. https://theglobalaccessfiles.wordpress.com/2017/03/24/a-letter-to-parents-of-kids-with-disabilities/ I’ve been privileged to talk
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Hello Everyone, My husband and I have taken our son (who is now 1 year old exactly), to several specialists at Shriner’s, regular hospitals with Spina Bifida clinics, and even a retired bone & joint specialist. We are convinced that a spica cast could help him as he has nerve innervation (as far as we can tell) to both legs
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Usually when I walked, I would lift one leg and collapse into the knee, then do the same with the other, over and over. Thanks to the support of the braces, I got a sense of what it was like to move with an actual heel-to-toe rollover motion. I looked up at Ryan. “Fuck, man,” I said. “Let’s do it!” I headed back to Los Angeles, where my daydreams, for once, had a happy ending.
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My name is Tracy. I have a 4 yr old, Kate, and a 1 yr old, Caroline who has Spina Bifida. I am so excited about this website and all of the great resources on here in efforts to find a balanced approach with SB management. I have a similar story as many, many people – negative AFP, older mommy, second child,
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Hello, I am Hanny’s mom. Hanny has a three year old brother DJ and Hanny is 9 months at this time and happens to have spina bifida. We had a doctor who monitored baby every 3 wks using ultrasound due to my “high risk” pregnancy (from previous son’s complications). He couldn’t ever tell the gender because of many unusual things.
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