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Category Archives: Urodynamics

If you or someone you love have spina bifida we want to meet you!

March 9, 2016 Donna -Encouraging Stories, -Need Encouragement, -Our Kids Stories, Arnold Chiari II / Hydrocephalus, Bracing (AFOs, SMOs, etc.), Cathing, Constipation, Diaper Rash Wound Care, Equipment (Stander Walker Wheels), Folic Acid / Folate, Hip Dysplasia, Latex Allergy, Learning Disability, MACE, Manual Therapies, Miralax, Mitrofanoff, Mobility, Neurogenic Bladder, Neurogenic Bowel, Potential SB Causes, Scar Treatment, Spina Bifida News, Stem Cell, Strength Training, Tethered Cord, Urodynamics, VP Shunt

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A urology update

January 20, 2015 MrsK Ditropan, Neurogenic Bladder, Urodynamics

Good morning, all. We had our first annual follow up with urology yesterday and I just thought I would share. If any of you have insight, please don’t hesitate to share. Yesterday’s appointment included a urodynamics study and renal ultrasound. Because we had a VCUG very early on that showed no reflux and we have had no UTIs, there

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Recent Treatment Reviews

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“My baby was on Miralax from 4 months to 10 months old. Despite being entirely breastfed, she became constipated within days of starting Ditropan for her bladder. I hated having to give her the Miralax and never even achieved very good results. I heard about using emulsified fish oils and blackstrap molasses as an alternative. I have to admit that I was skeptical at first. I started with just the fish oils, which did make the stools very slippery but not soft enough. I then added the molasses - wow, magic!! The stools are now the perfect consistency, much better than I could ever achieve with Miralax. And we have the added health benefits of fish oils (heart and joint health, brain health, etc) and molasses (great source of iron that won't cause constipation). The only reason for 4 stars instead of 5 is that my baby initially was not a fan of the flavors and it takes a bit to find the perfect dose. However, I am finding easier ways to get the supplements in and flavored fish oils help too. We are also able to mix her daily probiotic right in with these supplements to really round out her bowel health.”

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October 25, 2014

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“I swear by cloth diapers. Not only does it greatly reduce the incidence of diaper rash, but also help reduce waste and reduce cost. Cloth diapering these days is very, very simple - no more diaper pins and folding! Seriously soooooo easy! When there is diaper rash, you can still use diaper creams, but have to be careful to not get the creams onto the diaper (some of them can damage the wicking/drying ability of the diaper). I just put a single Via paper towel between the diaper and baby to protect the diaper when using creams. My LO recently had a fungal diaper rash after being on mega antibiotics for a presumptive UTI. My favorite cream to use was a mixture of Critic-Aid (by Coloplast), any OTC anti-yeast cream (like Vagisil), and hydrocortisone. I hated using medicated ointment, but it cleared the rash up quickly, so I could go right back to plain cloth diapers without the paper towel and only natural creams when needed.”

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Water therapy in all forms is amazing!

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