Category Archives: Pregnancy

Just been for 19 week scan yesterday to be told our baby has Spinal Bifida

Just been for 19 week scan yesterday to be told our baby has Spinal Bifida felt like our hearts had been ripped apart. Me and my partner have been told we have 3 weeks to make a decision obv its not something you expect to have to make. We want the best for  our baby but have been told there

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Claire’s Story

During my pregnancy with Claire, I was told she had meningocele and the doctors told me, “just be glad she doesn’t have myleomeningocele!” So, my pregnancy passed easily and ironically, I was mostly just thankful that she didn’t have myleo. Of course, she did have myleo and so her birth felt like it came with a completely different diagnosis.  It

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