Hello, I am Hanny’s mom. Hanny has a three year old brother DJ and Hanny is 9 months at this time and happens to have spina bifida. We had a doctor who monitored baby every 3 wks using ultrasound due to my “high risk” pregnancy (from previous son’s complications). He couldn’t ever tell the gender because of many unusual things.
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Hello! My name is Megan and I am so excited to have stumbled across this site!!! I have been looking for something like this for years. Me and my family are from Utah. My husband Carl and I have been married for 8 years and we currently have 4 children with one on the way. (one boy, three girls, with a boy on the way) Our oldest
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During my pregnancy with Claire, I was told she had meningocele and the doctors told me, “just be glad she doesn’t have myleomeningocele!” So, my pregnancy passed easily and ironically, I was mostly just thankful that she didn’t have myleo. Of course, she did have myleo and so her birth felt like it came with a completely different diagnosis. It
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So many wonderful families here already! Let’s see if I can give you the concise version of our story so far. (Warning – I’m not good a short versions.) I have four children in total. Two of them are adults, one (19) still at home and with some learning disability issues of her own. Just about three years ago now,
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We have a different story than most. I was 28 when I had Lili, our first of three children. She was a bit slow to meet the milestones (never crawled, walked very late, couldn’t hop, etc), but we were always told she was just a bit behind physically. After being successfully potty trained for over 2 years, she suddenly started
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Hi! I am Lydia, mother of 5, two of whom are girls with SB. We found out that Lauren would have SB when I was just over 20 weeks pregnant with her. The fetal surgery was ongoing at Vanderbilt at that time, but we were not candidates for the surgery. Praise God, because I ended up having sweet twin boys
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My name is Tracy. I have a 4 yr old, Kate, and a 1 yr old, Caroline who has Spina Bifida. I am so excited about this website and all of the great resources on here in efforts to find a balanced approach with SB management. I have a similar story as many, many people – negative AFP, older mommy, second child,
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Hi, I’m TSpar and I am so excited about this website! I have been searching the web for natural and alternative treatments ever since we received my daughter’s SB diagnosis last August. As many of you probably know, this type of information is not easy to find. Here’s our story: All of our doctors wanted to plan a c-section at
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