Category Archives: -Our Kids Stories

If you or someone you love have spina bifida we want to meet you!

https://www.facebook.com/groups/SpinaBifidaAdultsUnite/

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Carl James’ Story

Hello! My name is Megan and I am so excited to have stumbled across this site!!! I have been looking for something like this for years. Me and my family are from Utah. My husband Carl and I have been married for 8 years and we currently have 4 children with one on the way. (one boy, three girls, with a boy on the way) Our oldest

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Claire’s Story

During my pregnancy with Claire, I was told she had meningocele and the doctors told me, “just be glad she doesn’t have myleomeningocele!” So, my pregnancy passed easily and ironically, I was mostly just thankful that she didn’t have myleo. Of course, she did have myleo and so her birth felt like it came with a completely different diagnosis.  It

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SB Occulta – Diagnosed at 6 years old

We have a different story than most. I was 28 when I had Lili, our first of three children. She was a bit slow to meet the milestones (never crawled, walked very late, couldn’t hop, etc), but we were always told she was just a bit behind physically. After being successfully potty trained for  over 2 years, she suddenly started

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