my daughter who is 23 years old is in remission from All luekmia and now pregnant with twins at 11 weeks old the doctors have told us that both twins have bifida this all new to us very scary time , can you please advice what vitamins she should be taken?
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Hi! Has the board been quiet, or is it just me? We decided to look into stem cell treatments. We see a lot of nice anecdotes online. We’d like to be able to talk to another parent whose child received stem cell treatments, such as in China or Germany. Can anyone connect us?
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Hi All, I hope you are all enjoying your summers! I know that we are. We have had some problems with the site recently and I wanted to address a few of them: 1) We have had some individuals join the site recently just to post advertising spam. I apologize for this. Luckily I was at my computer each time
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Happy Mother’s Day Friends! I love this post by Jesus Arroyo over at My Bleeding Ink. He originally posted it on Mother’s Day 2013. It’s long, but worth it. It always makes me cry! An Open Letter to My Mom Posted on May 12, 2013 by My Bleeding Ink Recently I was able to get all my medical records. 90%
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Soooo… We’ve had my little granddaughter with us for a few weeks now. Z has been going crazy trying to get into the thick of the games and silliness that the other babies have been doing. Talk about movtivated!! Last week she really, really started cruising around and trying to use a little walking toy. I sent a text
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So I was just searching for a post I read awhile back that was entitled something to the effect of “A letter to myself when I got my Spina Bifida diagnosis.” I didn’t find it, but I found a similar post on a very fun blog, which got me thinking. I’d like to compile a list of “Inspirational SB Blogs.”
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I know that we are a very small group, but I wanted to post this story here in hopes that it will be forwarded on via email or Facebook. Mia Hayes, is a little girl with Spina Bifida who suffered a hypoxic brain injury while undergoing stem cell treatment in Mexico. Her mother, Haley, and I were both members of
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We are excited to announce that we have a new profile in the Adult Stories section. What makes this story special is that you will also find Angela listed on our Physicians & Therapists page as well. Angela Dockter is a healthy 44-year old Holistic Healthcare Practitioner who was born with myelomeningocele L3-S1 and attributes her unassisted mobility to the
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Sending a little Christmas Love to each of you. Hope all is Merry and Bright for one and all!!
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Merry Christmas Friends! I thought it would be fun to share Christmas pictures of our kiddos. I’ll start. And while we’re on the subject of pictures, I thought I would take a minute to talk about profiles, signatures and photos. The way the group photo gallery works is, any pictures you upload will show up in your profile AND in the
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