I’ve been meaning to get on here to post about the 6 month trial we are doing with natural bladder meds. In October we finally got in for ultradynamics testing in Portland after being denied twice in Seattle. Tillian is 3 and hasn’t had one in over 2 years. The resuls showed irregular shaped bladder, some bladder wall thickening, lower
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A few of us have been discussing the merits of juniper oil for bladder via email. We know very little, but have a lot of speculatory thoughts about what it might be capable of accomplishing in our little ones’ bladders. So I have cross-posted over on the FB Group – Wellness with Essential Oils for Spina Bifida Families asking the
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This video has been circulating on the Anat Baniel (ABM) FB groups. And I’m always looking for more concrete ways to both understand & explain how ABM works. This is a fascinating story! You need to watch it all the way to the end! I’ve been thinking about this video for days. I never really thought about the complexity of
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As many of you know, we have been struggling with our AFOs. They hinder Pooka’s crawling & standing. Because she lacks adductor muscles, the AFOs act like long rigid levers that cause her hips to swivel into unnatural positions. But she can’t stand properly without them. Can’t live with them, can’t live without them! 😉 Without them, she stands on
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Hello All! I wanted to take a minute to welcome all of our new members. We’ve probably doubled our membership/email subscription in the past week. Not sure where all the traffic is coming from, but we’ll take it! We’re so glad you’re here! We would love to meet you, hear your story & glean from your experience. There are quite
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Happy Mother’s Day Friends! I love this post by Jesus Arroyo over at My Bleeding Ink. He originally posted it on Mother’s Day 2013. It’s long, but worth it. It always makes me cry! An Open Letter to My Mom Posted on May 12, 2013 by My Bleeding Ink Recently I was able to get all my medical records. 90%
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I’ve mentioned Triphala quite a bit in various posts & comments over the past few months, but I’m going to repeat it all here so this post can be a One-Stop-Triphala-Shop, so to say. I first heard of Triphala while searching for natural treatments for Spina Bifida. I found it listed as an ingredient in a product recommended for managing
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Rather than continue the ABM discussion over on the bowel routine post, I thought I would create a new post here. So I’m curious, did you see results early on and then they stopped? And how is Lewis’ mobility now, if you don’t mind my asking? The reason I am so curious is because there are SO FEW SBers doing
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Ha, pretty funny title for a clueless lady. I am hoping it will be a dummies course for ME!!! So as I mentioned in a comment on another post, I tried to get my head around the whole enema thing and found the task more difficult than expected. There is certainly no website that I can find that lays out
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So I’ve seen too many moms say they tried to switch over to natural things only to find out (to their surprise) that their child was really impacted. This is very discouraging to me. Neurogenic bowels can be so complicated. So I thought it was important to start a thread to discuss all these issues: how to know when your
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