Author Archives: Camilla

Claire’s Story

During my pregnancy with Claire, I was told she had meningocele and the doctors told me, “just be glad she doesn’t have myleomeningocele!” So, my pregnancy passed easily and ironically, I was mostly just thankful that she didn’t have myleo. Of course, she did have myleo and so her birth felt like it came with a completely different diagnosis.  It

» Read more

Encouraging Article!

http://www.bbc.com/news/health-29645760 At Kennedy Krieger Institute, who specialize in paralysis rehabiliation, it seems their perspective is to keep your body as healthy and muscles as stimulated as possible, and wait for science (stem cells) to catch up. The doctor I spoke with there did not think that the treatments in Mexico were doing anything. Articles like this are really encouraging. If

» Read more